What? No Data!
Hello friends and family!
Xavier had a busy weekend. He met many new people, one driving down from Fort Collins to see him. He also, along with his mom, was introduced to a Denver specialty: White Fence Farms.
Tuesday, two more people will pay a visit from the North country of Fort Collins. These ladies will be arriving about the time mom needs a break, so that will be a blessing to Rebecca.
Sunday, because Xavier slept so much in the morning (not his usual M.O.), he attempted to re-order his feeding schedule to be every :50 minutes, and he was fussy about it. One might say he was in a "wee bit of a snit" when his bottle was not Johnny-on-the-spot. Also, he was gassy and colicky, which is not unusual.
Rebecca left the house to "go shopping" and entrusted me with the Little Professor (as my sister calls him). I was determined to get him back on his 2 1/2 to 3 hour schedule so both Rebecca and I could get some sleep Sunday night. Like a "Kung Fu" flashback, I reminisced about the NICU, wondering how they might have handled his loud, complaining condition. Then it came to me: Use the pacifier, Michael! It was brilliant, and it allowed us to get Xavier back on his schedule! Thank you, NICU nurses.
This weekend, after cleaning up several of Xavier's eruptions, we decided that he sometimes cannot distinguish the gassy pain he gets from hunger, which is why he wants to eat instead of burp (or fill a diaper). This revelation also helped us in managing his comfort.
We called Apria today to learn if Xavier can come off his oxygen. The lady at Apria informed us the oximeter had no data on it. Rebecca countered with, "He was on the meter for eighteen hours. How is there no data?"
A fair question, but one to which we did not get an answer other than "I don't know." Not a satisfying answer. So, Apria is sending by special courier another oximeter. Xavier only needs four hours on the meter at room air, so that is all we are going to do this time.
Needless to say, Xavier is still encumbered with a cannula and his parents with an O2 tank. "I'm his mother," Rebecca told me, "and I think he will be just fine without the oxygen." Nodding in agreement (don't get on mom's bad side where Xavier is concerned) I countered with "I'm his father and I'm not going to pay for a broken oximeter." It's interesting how different our thoughts were upon hearing the news of having to do another Room Air test.
Xavier has another followup ROP exam on Wednesday to check his vision and assess his eye development.
Always, we thank you for your prayers. Awesome is our God, Who always leads us to triumph in Christ Jesus!